Turning sixty is the day which makes most people realize that they are inching closer towards retirement. This is why sixtieth birthdays are all about celebrating the beginning of the end of life’s hectic years. No one knows that better than Reginald Todd Hewitt, Founder and Executive Director of a not for profit organization established for one of his daughters whom he lost suddenly in 2009 of a rare viral disease called Progressive Multifocal Leukoencephalopathy (PML). At a time when … [Read more...]
Mother’s Day TCP
May 6, 2014 by Team Celebration
Happy Mother's Day our Dear beautiful Mother, Courtney Leigh Hewitt. We miss you, we love you, we feel your presence everywhere and today, although we can't embrace you, smell your perfume, we know you are always and forever here with us! What we are able to shower you with today are all the beautiful proclamations and awards given in your honor! Even after your death, your voice is synonymous and radiates around the world as people learn what a loving, caring and compassionate mother you … [Read more...]
Filed Under: AFRICA, ASIA, CA-- USES, CARIBBEAN, CENTRAL AMERICA, Courtney's Story, EURASIA, EUROPE, FORMER SOVIET UNION, INSPIRATIONAL VIDEO, MIDDLE EAST, NORTH AMERICA, OCEANIA, SELF CARE, SOUTH AMERICA, Uncategorized, Videos Tagged With: Alabama, aliens, Colorado, Courtney Leigh Hewitt, earthly biological systems, Florida, GEORGIA, JC Virus, Louisiana, Mother's Day TCP, New Mexico, North Carolina, Oregon, PML., South Carolina, Tennessee, Texas, The Courtney Project, Todd Hewitt, Virginia
2014 PML AWARENESS RUN & WALK – OCT 11 (Orlando)
March 18, 2014 by Team Celebration
Dear Friends and Supporters, Now in existence for over 5 years, The Courtney Project www.the-courtney-project.org continues to strive to expand its programs and offerings to the community. We hope that you will be able to take part in one or more of the many exciting events that we are offering this year and experience firsthand the pride we take in supporting our cause. It is our mission to increase global awareness of Progressive Multifocal Leukoencephalopathy (PML) a rare viral … [Read more...]
Filed Under: AMERICAN [U.S.A.], CA-- USES, CONTRIBUTORS, Courtney's Story, FEATURED EVENTS, Uncategorized Tagged With: acelebrationofwomen.org, awareness days, charity, find a cure, JC Virus, NOT FOR PROFIT, PML., Rare Diseases, rare viral disease, The Courtney Project 501c, Todd Hewitt, Todd Reginald Hewitt
The Courtney Project (501c3) is Taking Action !
January 1, 2014 by Team Celebration
SUPPORT The Courtney Project(501c3) Today! The cause of PML is a type of polyomavirus called the JC virus (JCV), after the initials of the patient from whose tissue the virus was first successfully cultured. Recent publications indicate 39% to 58% of the general population are seropositive for antibodies to JCV, indicating current or previous infection with virus. The JC virus or John Cunningham virus (JCV) is a type of human polyomavirus (formerly known as papovavirus) and is … [Read more...]
Filed Under: AFRICA, AMERICAN [U.S.A.], ASIA, CARIBBEAN, CENTRAL AMERICA, EURASIA, EUROPE, FEATURED, FEATURED EVENTS, FORMER SOVIET UNION, MIDDLE EAST, NORTH AMERICA, OCEANIA, SELF CARE, SOUTH AMERICA, Uncategorized Tagged With: acelebrationofwomen.org, Belatacept, Central and West Africa, corticosteroids, cyclophosphamide, cyclosporine, Efalizumab, highly active antiretroviral therapy, human polyomavirus, Infliximab chemotherapy, JC Virus, John Cunningham, John Cunningham virus (JCV), methotrexate, Natalizumab, papovavirus, PML., prednisone, Reginald Todd Hewitt, Rituximab, The Courtney Project (501c) is Taking Action!, Todd Hewitt, transplant drugs such as tacrolimus
Todd Reginald Hewitt – MAN of ACTION™
September 9, 2012 by Team Celebration
A Celebration of Women™ is honored this day to Celebrate the Life of a thoroughly inspiring man, a definite awakened soul. Through a series of tragic events in his own life, this man has turned a new leaf and today devotes his life not only to his own family; but, to a cause that will assist all families to become aware ... of a viral disease that could affect up to 95% of our society named: PML Taken Action in his life for the betterment of others !!! MAN of … [Read more...]
Filed Under: FEATURED, MAN of ACTION™ Tagged With: A Celebration of Women, Bea Arthur, Betty Lane Cherry Gramling-Owner, Betty Lane Models, Bloomingdales, blurred vision, brain biopsy, chronic corticosteroid, confusion, Courtney's Story, CT Scan, disorientation, Don Johnson, Fashion Stylist, fatigue, Hodgkin’s disease, immunosuppressive therapy, impairment of learned skills, JC Virus, loss of balance, lymphoma, MAN of ACTION, Melanie Griffin, men, MRI, Nell Carter, Orangeburg, Orlo Vista Chamber Board, Orlo Vista Chamber of Commerce, PML., possibility, President of M.A.A.I, progressive multi-focal-leuko-encephalapathy, S.C.State College, sarcoidosis, seizures, Sidney Poitier, South Carolina, South Carolina Public School System, Todd Reginald Hewitt, Todd Reginald Hewitt - MAN of ACTION™, viral disease, Walt Disney World Company Entertainment, weakness on one side, women.
The Courtney Project.org is Taking Action with Fabian Morales!
July 20, 2012 by Team Celebration
The video will be available for order along with the beautiful PML Awareness Lapel Pin. With a Donation of $25 or more to The Courtney Project The Courtney Project.org you will receive a copy of Courtney's Story written by Reginald Todd Hewitt and your very own awareness pin to show your support! Fabian Morales, a Colombian born Film Producer/Director has graciously offered his time and many talents and has become the newest member of Team … [Read more...]
Filed Under: AIDS - H.I.V., AMERICAN [U.S.A.], CA-- USES, Courtney's Story Tagged With: A Celebration of Women, AIDS, awareness, books, brain, brain diseases, creating awareness, cure, Death, Fabian Morales, find a cure, HIV, medical care, PML., The Courtney Project.org is Taking Action, The Courtney Story, Todd Hewitt, Todd Reginald Hewitt, viral disease, women.
Courtney’s Spirit is Taking Action – What is PML?
March 3, 2012 by admin
What is PML...???? Progressive Multifocal Leuko Encephalopathy. Courtney Leigh Hewitt PML can also occur in organ transplant patients, people undergoing chronic corticosteroid or immunosuppressive therapy, and people that have certain cancers, such as Hodgkin's disease, lymphoma, and sarcoidosis. PML disease most commonly occurs in anyone who has ever had the Chickenpox or has a weakened or compromised Immune System and affects the central nervous system and brain. The symptoms … [Read more...]
Filed Under: Courtney's Story, WOMEN Taking ACTION Tagged With: A Celebration of Women, affects the central nervous system, AIDS, and people that have certain cancers, blurred vision, brain, Chickenpox, compromised Immune System, confusion, Courtney Leith Hewitt, Courtney's Story - What is PML?, disorientation, fatigue, HIV, impairment of learned skills, loss of balance, lymphoma, organ transplant patients, PML., Reginald Todd Hewitt, sarcoidosis, seizures, such as Hodgkin's disease, Take Action, Todd Hewitt, weakness on one side, women taking action
NORD Foundation ~ October 2011
October 26, 2011 by Team Celebration
October 2011 eNews Nearly 400 Participate in NORD Conference At the U.S. Conference on Rare Diseases and Orphan Products in Washington DC Oct. 11-13, NORD released a major new study documenting flexibility in the Food and Drug Administration (FDA) review of potential treatments for patients with rare diseases. The study examined the approval of 135 non-cancer orphan drugs since 1983. Read the report and NORD’s press release. Speakers Include NIH Director, Social … [Read more...]
WOMAN of ACTION™ – Courtney Leigh Hewitt
September 19, 2011 by admin
A Celebration of Women™ is honored to Celebrate the Life through this Tribute to a Caring, Compassionate, Courageous, Giving and Strong Woman! This Woman's dying wish was to share her Story so that as many people possible could be educated on the elusive traits of a disease named PML. The Courage and Strength that she maintained during her experience with this disease is an Inspiration to One & All. In the words of her Father: '...before Courtney lost her ability to speak, she asked me … [Read more...]
Filed Under: Courtney's Story, WOMEN of ACTION™ Tagged With: AIDS, Courtney Leigh Hewitt, Courtney's Story of PML, cure, disease, Florida, HIV, Mickey, Mickey Mouse Club, Mouseketeer, New York, NORD, PML Courtney's Story, PML., Private Investigator, rare disease, Tony Lucca, U.S.A., Walt Disney
Courtney Reaches out to the Florida Keys!
July 20, 2011 by admin
CONCH COLOR of the Florida Keys share this very important true story ... Father turns anger over daughter’s death... into mission to educate others about PMLTodd Hewitt is on a mission to spread the word about a little- known disease that took the life of his beloved 31-year-old daughter two years ago. The former Orangeburg resident’s daughter, Courtney Leigh, died of progressive multifocal leukoencephalopathy, a condition that even the specialists treating Courtney … [Read more...]
Filed Under: AMERICAN [U.S.A.], Courtney's Story, WORLD EVENTS Tagged With: A Celebration of Women, central nervous system, chronic corticosteroid therapy, Courtney Leigh Hewitt, Courtney Reaches out to the Florida Keys!, Hodgkin’s disease, immune-compromised individuals, immunosuppressive therapy, individuals with cancer, lymphoma, National Institutes of Health, PML., Progressive Multifocal Leukoencephalopathy, sarcoidosis, viral disease, Woman of Action, women taking action, women., ‘Courtney’s Story’
Courtney's Dad 'GETS MAIL' , PML Strikes Again !!!
July 4, 2011 by admin
Dear Mr. Hewitt, Thank you so much for your response! Somehow, it makes me feel better to know there is someone who totally understands the devastation and heartache our family is currently going thru. I was told today that she is being started on IVIG treatment. They put her on Heparin yesterday evening; and were hoping to remove the catheter from her neck (where she had the plasma exchange treatments), but said her blood was too thin right now to attempt that. Hopefully, they will get that … [Read more...]
Filed Under: AMERICAN [U.S.A.], Courtney's Story Tagged With: A Celebration of Women, anger, antivirals, Awareness of PML, bless my mother, brain biopsy, COURTNEY'S DAD GETS MAIL, Dianna Self, emotions, Heparin, HIV, IMMUNE DIFFICIENCY, Infectious Disease Specialist, IVIG treatment, MRI, MS, plasma exchange treatments, PML - Global Awareness, PML Strikes Again !!!, PML., power of positive thinking, power of prayer, Progressive Multifocal Leukoencephalopathy, sadness, stress, Take Action, viral brain disease, women taking action
Courtney’s Dad ‘GETS MAIL’ , PML Strikes Again !!!
July 4, 2011 by admin
Dear Mr. Hewitt, Thank you so much for your response! Somehow, it makes me feel better to know there is someone who totally understands the devastation and heartache our family is currently going thru. I was told today that she is being started on IVIG treatment. They put her on Heparin yesterday evening; and were hoping to remove the catheter from her neck (where she had the plasma exchange treatments), but said her blood was too thin right now to attempt that. Hopefully, they will get that … [Read more...]
Filed Under: AMERICAN [U.S.A.], Courtney's Story Tagged With: A Celebration of Women, anger, antivirals, Awareness of PML, bless my mother, brain biopsy, COURTNEY'S DAD GETS MAIL, Dianna Self, emotions, Heparin, HIV, IMMUNE DIFFICIENCY, Infectious Disease Specialist, IVIG treatment, MRI, MS, plasma exchange treatments, PML - Global Awareness, PML Strikes Again !!!, PML., power of positive thinking, power of prayer, Progressive Multifocal Leukoencephalopathy, sadness, stress, Take Action, viral brain disease, women taking action
PML Strikes Again!!!!
June 10, 2011 by admin
Progressive Multifocal Leukoencephalopathy (PML) A Celebration of Women is here for the Women of our World, WE hear YOU! Below is just one letter received by the grieving father of our very own WOMAN of ACTION - Courtney Leigh Hewitt who died unnecessarily of the JC Virus activated, misdiagnosed and allowed the time to ignite the viral brain disease named PML. Below, you will read the cry and pleas of one more victim to this horrific, under estimated, under appreciated … [Read more...]
Filed Under: Courtney's Story, FEATURED Tagged With: acquired immune deficiency syndrome, brain biopsy, chronic corticosteroid, Courtney Leigh Hewitt, disregarded disease, Hodgkin’s disease, immunosuppressive therapy, Infectious Disease Specialist, JC Virus activated, lymphoma, neurologists, organ transplant patients, plasma exchange treatments, PML., Progressive Multifocal Leukoencephalopathy, sarcoidosis, spinal fluid, viral brain disease, Woman of Action
NORD Foundation – May 2011
May 20, 2011 by admin
May 2011 ~ eNews NORD to Co-sponsor 1st Annual Rare Diseases/Orphan Products Summit NORD will co-sponsor the 1st Annual Rare Diseases/Orphan Products Summit on Oct 11-13, under the auspices of the Drug Information Association (DIA). Collaborating organizations include EURORDIS (the European Rare Disease Organization), FDA, NIH, and Duke Clinical Research Institute. In addition to plenary sessions with senior government, industry, and patient speakers, there will be three tracks at the … [Read more...]
Filed Under: Courtney's Story Tagged With: A Celebration of Women, advocacy, audiences, brain diseases, chronic sarcoidosis, Commissioner Margaret Hamburg, Congressional Caucus, corticobasal degeneration, Courtney' s Story, disease, education, eNews, enhanced collaboration, European Rare Disease Organization, EURORDIS, government., greater transparency, including medical professionals, industry, information, May 2011, MD, Medical Foods Equity Act, multiple system atrophy, NIH Chemical Genomics Center, NORD Foundation, PML., progressive supranuclear palsy, Rare Disease Org., Recent Drug Approvals, registration, Related Brain Diseases (CurePSP), science-based decision-making, Senator Bob Casey, Tammy Baldwin, viral disease, virus, WOMEN of ACTION™, women taking action, women.
NORD – Newsletter @ April 2011
April 28, 2011 by admin
Forward this to a friend April 2011 eNews New Consortium Promotes Global Approach to Rare Diseases NORD and other patient advocates participated in the recent launch in Washington, DC of a new international consortium to promote global collaboration on rare diseases and orphan products. The International Rare Disease Research Consortium (IRDiRC) has set some ambitious goals, including the development of 200 new rare disease treatments by the year 2020 and the … [Read more...]
Filed Under: Courtney's Story, FEATURED Tagged With: A Celebration of Women, Affordable Care Act, AIDS, Australia!, challenges, Compromises, Courtney's Story, CT, Danbury, EURORDIS, HIV, Medicaid Innovation Seeks Ideas, National Organization for Rare, Newsletter @ April 2011, NORD, Orphan Diseases, Orphan Drug Act, PML., Rare Diseases, rarediseases.org, Shriners Hospitals for Children, The Courtney Project, The Innovation Center, Treatment of Rare Diseases, WOMEN of ACTION™, women taking action, women with diseases, women.
