NORD Foundation – May 2011

May 2011 ~  eNews NORD to Co-sponsor 1st Annual Rare Diseases/Orphan Products Summit NORD will co-sponsor the 1st Annual Rare Diseases/Orphan Products Summit on Oct 11-13, under the auspices of the Drug Information Association (DIA). Collaborating organizations include EURORDIS (the European Rare Disease Organization), FDA, NIH, and Duke Clinical Research Institute. In addition to plenary sessions with senior government, industry, and patient speakers, there will be three tracks at the … [Read more...]

Courtney Leigh Hewitt – Taking Action: A Father’s Cry for Awareness!

      A Celebration of Women celebrates the Life of Courtney Leigh Hewitt, never to be forgotten or lived in Vain. The passing of Courtney to the horrible viral disease of PML has inspired a devoted Team of empassioned people to enter Crusade mode, creating global Awareness of PML. Long live the Spirit of Courtney Leigh Hewitt! … [Read more...]

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