NORD Foundation – May 2011

May 2011 ~  eNews NORD to Co-sponsor 1st Annual Rare Diseases/Orphan Products Summit NORD will co-sponsor the 1st Annual Rare Diseases/Orphan Products Summit on Oct 11-13, under the auspices of the Drug Information Association (DIA). Collaborating organizations include EURORDIS (the European Rare Disease Organization), FDA, NIH, and Duke Clinical Research Institute. In addition to plenary sessions with senior government, industry, and patient speakers, there will be three tracks at the … [Read more...]

NORD: March 2011 Report

    March 2011 eNews NORD Welcomes Five New Board Members Five noted leaders in the rare disease community have been elected to the NORD Board of Directors. Details. NORD Forming Coalition on Medical Foods Issue At a conference hosted by NORD in Washington DC last month, approximately 80 patient advocates, physicians, genetic metabolic dietitians, and others agreed to form an ongoing coalition to address problems related to accessing the medical foods required for treatment of … [Read more...]

Courtney’s Story: Special Holiday Offer!

  Courtney's Story: A Compelling True Story My Precious Baby Girl [Paperback]    WOMAN of ACTION: Courtney Leigh Hewitt https://acelebrationofwomen.org/?p=16540    HOLIDAY OFFER not to be missed!   Order NOW!   CLICK HERE:  Reginald Todd Hewitt       … [Read more...]

NORD – December 2010

    NORD e-News: December 2010 Edition   Holiday Greetings to All! On behalf of the NORD staff, Board of Directors, and Medical Advisory Committee, we extend our best wishes to all for happy holidays and a wonderful New Year! NORD is blessed with a strong and supportive circle of members and friends. We look forward to working with all of you to make 2011 the best year ever for the patients and families who rely on us to promote awareness, innovative research, medical advances, and fair … [Read more...]

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