Through Times of Adversity I Won’t Let You Go, Dragonfly Whisperer

This video was created by http://www.gossamerheart.com/ using Rascal Flatts song "I Won't Let Go" I wanted to pay tribute to all of those who offer support and encouragement to those who have been traumatized, abused, grieving, chronically ill and broken hearted. It is difficult to heal in isolation, and I feel it is our purpose on this earth to put the "we" in wellness, by showing love and support to those who are suffering. So, with honor and praise I made this video for all you … [Read more...]

I’m Grateful For Over The Rainbow Dreams And For This Wonderful World

"I thought the MS took my creativity away then all of a sudden after a long period of prayer and meditation the damn broke loose and I'm working on 4 at once. I have one of the most powerful videos I ever made on overcoming sexual assault and abusive relationships. (Coming Soon)" So here is my Gratitude video. I'm Grateful For Over The Rainbow Dreams And For This Wonderful World Quote: I am grateful to Glinda, the good witch in The Wizard of Oz: who was a head of … [Read more...]

Awaken to Better Days ~ Dragonfly Whisperer * Video

Awaken to Better Days After 6 months of fighting mind numbing pain caused by Multiple Sclerosis, I was able to withdraw inside myself and create this video of hope, with the influence and support of my dear friends Mike McKenzie and CG Walters who opened my heart and touched my soul, teaching me to find those Better Days. Using the song from Eat, Pray, Love, by Eddie Vedder, I was inspired to go within through meditation and spiritual practice and find my connectedness to the Universe, as … [Read more...]

FDA means Feet Divided Apart, Lynette Louise MS, BCN-T, CBS and self appointed PhD in M.O.M

I often feel as if I am standing with one foot in each camp: mainstream or alternative! I believe in checks and balances and I am delighted that we have government bodies whose job it is to keep us safe from charlatans and life threatening drugs. Unfortunately, in my experience the FDA doesn't do that very well. In fact the more I look into it the more likely it seems that it will put us in harms way rather than keep us from it. I work with neurofeedback and specialize in autism. … [Read more...]

INSPIRATIONAL VIDEO – I CAN RISE ABOVE THIS PRISON

I CAN RISE ABOVE THIS PRISON     This video was made for http://www.gossamerheart.com / and is dedicated to all of you who are dealing with a chronic illness, or disease and to their caretakers as well. I present an honest look at living with a chronic illness and how a person feels to be trapped inside a body that once served them, but no longer does. Please visit our web site we support those who suffered abuse, oppression, and those who are chronically ill. Our web site … [Read more...]

Dragon Whisperer – Optimism Shines In My Moon Shadow

Optimism Shines In My Moon Shadow (multiple sclerosis) I made this video to illustrate my journey through multiple sclerosis, hoping to share a realistic but optimistic view of moving through M.S. Also I see my multiple sclerosis as a spiritual learning experience. I hope those of you dealing with MS find emotional comfort in the difficult times of relapses and exacerbations. You can find this video as well as my other video creations on … [Read more...]

What is MS ("Multiple Sclerosis")? – HEALTH for WOMEN

What is MS? Multiple sclerosis (MS) is an unpredictable, often disabling disease of the central nervous system which is composed of the brain and spinal cord. The disease attacks the myelin which is a protective covering wrapped around the nerves of the central nervous system.Multiple sclerosis is a complex disease and the Multiple Sclerosis Society of Canada is here to help. No one needs to face MS alone. In communities across Canada, our volunteers and staff provide information, … [Read more...]

Courtney's Dad 'GETS MAIL' , PML Strikes Again !!!

Dear Mr. Hewitt, Thank you so much for your response! Somehow, it makes me feel better to know there is someone who totally understands the devastation and heartache our family is currently going thru. I was told today that she is being started on IVIG treatment. They put her on Heparin yesterday evening; and were hoping to remove the catheter from her neck (where she had the plasma exchange treatments), but said her blood was too thin right now to attempt that. Hopefully, they will get that … [Read more...]

Courtney’s Dad ‘GETS MAIL’ , PML Strikes Again !!!

Dear Mr. Hewitt, Thank you so much for your response! Somehow, it makes me feel better to know there is someone who totally understands the devastation and heartache our family is currently going thru. I was told today that she is being started on IVIG treatment. They put her on Heparin yesterday evening; and were hoping to remove the catheter from her neck (where she had the plasma exchange treatments), but said her blood was too thin right now to attempt that. Hopefully, they will get that … [Read more...]

NORD: March 2011 Report

    March 2011 eNews NORD Welcomes Five New Board Members Five noted leaders in the rare disease community have been elected to the NORD Board of Directors. Details. NORD Forming Coalition on Medical Foods Issue At a conference hosted by NORD in Washington DC last month, approximately 80 patient advocates, physicians, genetic metabolic dietitians, and others agreed to form an ongoing coalition to address problems related to accessing the medical foods required for treatment of … [Read more...]

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