World Hepatitis Day 2011 – Whitehouse commemorates first Official Day!

Celebrating the FIRST INTERNATIONAL 'World Hepatitis Day' , this 2011, July 28th.   Today, I was honored to participate in a special White House event to commemorate the first official World Hepatitis Day. This event was one of many held across the United States and around the world for communities to join together and focus attention on the global health threat of viral hepatitis and promote actions to confront it. Worldwide, one in twelve persons are estimated to be living with … [Read more...]

NORD – Newsletter @ April 2011

    Forward this to a friend April 2011 eNews New Consortium Promotes Global Approach to Rare Diseases NORD and other patient advocates participated in the recent launch in Washington, DC of a new international consortium to promote global collaboration on rare diseases and orphan products. The International Rare Disease Research Consortium (IRDiRC) has set some ambitious goals, including the development of 200 new rare disease treatments by the year 2020 and the … [Read more...]

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