Liver Meeting™ Highlights, Corinna Dan

  Every fall, hepatitis and liver disease experts gather to share the latest viral hepatitis research and treatment updates at the Liver Meeting™ . I had the opportunity to attend this year’s meeting, held last month in Boston. The meeting was particularly exciting because it featured new information about many novel Hepatitis C treatments currently in development as well as the latest updates about how to best use currently available treatments. Corinna Dan There were numerous … [Read more...]

Parents and caregivers – 10 Facts About Febrile Seizures

It is estimated that 1 in every 25 children will have a febrile seizure, according to the National Institutes of Health. For parents whose child experiences a febrile seizure, the experience can be terrifying. Many parents are surprised to learn that young children can experience a seizure as a result of a fever. Fortunately, while febrile seizures are horrifying to watch, they are typically harmless and result in no long-term health risks or complications. Parents and caregivers should … [Read more...]

NORD: 1st Annual U.S. Conference On Rare Diseases & Orphan Products‏

Stellar Lineup of Speakers Announced for U.S. Conference On Rare Diseases And Orphan Products Join all stakeholders – patient advocates, researchers, government, industry, investors – in this 1st Annual Summit featuring thought leaders and focusing on collaboration! You are invited to the 1st Annual U.S. Conference on Rare Diseases and Orphan Products to be hosted by the National Organization for Rare Disorders (NORD) and the Drug Information Association (DIA). Additional support … [Read more...]

NORD e-News: July 2011 Edition

NORD e-News: July 2011 Edition Send a Message to Congress on NORD Website Federal budget cuts have been proposed to Medicare reimbursement for drugs and biologics as part of a compromise to raise the debt ceiling. One proposal under consideration is to move orphan products from Medicare Part B coverage to Part D. This could greatly increase the cost for some patients and families dependent on lifesaving orphan drugs and biologics. You can quickly and easily submit a message to President … [Read more...]

Antiretrovirals Protects Partners from Infection

NIH Research Update: Treating HIV-infected People with Antiretrovirals Protects Partners from Infection Today the National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health (NIH), released findings from a large-scale clinical study. This study found that men and women living with HIV who took oral antiretroviral medicines when their immune systems were relatively healthy, were able to reduce the risk of transmitting the virus to their … [Read more...]

President Obama's FY 2012 Budget – '… the National HIV/AIDS Strategy'

    Agency Operational Plans and the President’s FY 2012 Budget Highlight Our Continued Efforts to Implement the National HIV/AIDS Strategy       One of the goals of the National HIV/AIDS Strategy was to refocus existing efforts and deliver better results to the American people within current funding levels, as well as make the case for new investments. The Office of National AIDS Policy (ONAP) is excited to share some of the progress the Obama Administration has made over the last few … [Read more...]

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