March 2011 eNews NORD Welcomes Five New Board Members Five noted leaders in the rare disease community have been elected to the NORD Board of Directors. Details. NORD Forming Coalition on Medical Foods Issue At a conference hosted by NORD in Washington DC last month, approximately 80 patient advocates, physicians, genetic metabolic dietitians, and others agreed to form an ongoing coalition to address problems related to accessing the medical foods required for treatment of … [Read more...]
NORD: March 2011 Report
March 31, 2011 by admin
Filed Under: CONTRIBUTORS, Courtney's Story Tagged With: AIDS, Athletes Rare Disease Champion, Barrett’s Esophagus, Cancer Genome, Chief Scientific Officer (CSO), Courtney's Story, diabetes, heart disease, HIV, Jordan Culbreath, March 2011 Report, Medtronic Global Heroes program, MS, NORD, Phenylketonuria (PKU), PML., Princeton University Running Back, Rare Disease Org., Sage Bionetworks, TB, The Courtney Project, tuberous sclerosis complex, tuberous sclerosis complex (TSC), University of Minnesota Consortium, Vanderbilt-Ingram Cancer Center (VICC)
