Forward this to a friend April 2011 eNews New Consortium Promotes Global Approach to Rare Diseases NORD and other patient advocates participated in the recent launch in Washington, DC of a new international consortium to promote global collaboration on rare diseases and orphan products. The International Rare Disease Research Consortium (IRDiRC) has set some ambitious goals, including the development of 200 new rare disease treatments by the year 2020 and the … [Read more...]
WORLD AUTISM DAY – April 2, 2011
April 3, 2011 by
In a global observance, UN rallies support for people suffering from autism People with autism need support early on in life. This appeal comes from United Nations Secretary-General, Ban Ki-moon, in his message on World Autism Day observed on 2 April. The Secretary-General says that some people with autism suffer terrible discrimination, abuse and isolation and this violation of their human rights cannot be tolerated. "We can support parents. We can create jobs for individuals … [Read more...]
NORD September 2010 – The Courtney Project Supports
September 28, 2010 by
September 2010 eNews House Passes Improving Access to Clinical Trials Act In a victory for rare disease patients and families, the U.S. House of Representatives on Sept. 23 passed the Improving Access to Clinical Trials Act (I-ACT). The legislation, which had been passed a few weeks earlier by the Senate, now goes to the White House where President Obama is expected to sign it. “This legislation will support the development of new therapies by removing a barrier that … [Read more...]
