Janet Woodcock

NORD: 1st Annual U.S. Conference On Rare Diseases & Orphan Products‏

August 11, 2011 by Team Celebration

Stellar Lineup of Speakers Announced for U.S. Conference On Rare Diseases And Orphan Products Join all stakeholders – patient advocates, researchers, government, industry, investors – in this 1st Annual Summit featuring thought leaders and focusing on collaboration! You are invited to the 1st Annual U.S. Conference on Rare Diseases and Orphan Products to be hosted by the National Organization for Rare Disorders (NORD) and the Drug Information Association (DIA). Additional support … [Read more...]

Filed Under: Courtney's Story, SELF CARE Tagged With: (NIH)., A Celebration of Women, Amicus Therapeutics, Audrey Ashley at NORD, Bausch and Lomb, Center for Devices and Radiological Health, Center for Drug Evaluation and Research, Chairman and CEO, Chairman of the Board, Courtney's Story, director, Engelberg Center for Health Care Reform, Executive Director, FasterCures, FDA, Frank J. Sasinowski, Fred Hassan, Hyman, Inc., Janet Woodcock, JD, Jeffrey Shuren, John F. Crowley, Kelly C. Slone, limited scholarship, Margaret Anderson, Mark B. McClellan, MBA, MD, Medical Industry Group, MPH, National Organization for Rare Disorders, National Venture Capital Association, NIH Director Francis S. Collins, NORD, partner, patient organizations, Phd., Phelps & McNamara, Rare Diseases, senior vice president, Shannon Lewis at DIA, Shire Human Genetic Therapies, Stellar Lineup of Speakers, Suzanne L. Bruhn, Take Action, The Brookings Institution, The Courtney Project, Warburg Pincus, women taking action, Women's Health

NORD e-News: July 2011 Edition

July 26, 2011 by admin

NORD e-News: July 2011 Edition Send a Message to Congress on NORD Website Federal budget cuts have been proposed to Medicare reimbursement for drugs and biologics as part of a compromise to raise the debt ceiling. One proposal under consideration is to move orphan products from Medicare Part B coverage to Part D. This could greatly increase the cost for some patients and families dependent on lifesaving orphan drugs and biologics. You can quickly and easily submit a message to President … [Read more...]

Filed Under: Courtney's Story Tagged With: (ABTA), (AMDA), (NIH)., A Celebration of Women, Acid Maltase Deficiency Association, American Brain Tumor Association, benefit-risk analysis, Congress to Fund NCATS, Diane Dorman of NORD, Duke University, EURORDIS, FDA, FDA Office of Orphan Products, Illinois, innovation, Janet Woodcock, July 2011 Edition, Lincolnshire, MD, Medicare, MPH, NORD, NORD e-News, orphan drugs and biologics, Take Action, Timothy R. Coté, women taking action, women.

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