October 2010 eNews President Obama Signs Improving Access to Clinical Trials Act On Oct. 5, President Obama signed legislation to enable people with rare diseases to participate in clinical trials without losing eligibility for public health care benefits. The Improving Access to Clinical Trials Act had passed the Senate on Aug. 5 and the House on Sept. 23. The Cystic Fibrosis Foundation first identified this barrier to clinical research, and worked with leadership of the CF … [Read more...]
NORD September 2010 – The Courtney Project Supports
September 28, 2010 by
September 2010 eNews House Passes Improving Access to Clinical Trials Act In a victory for rare disease patients and families, the U.S. House of Representatives on Sept. 23 passed the Improving Access to Clinical Trials Act (I-ACT). The legislation, which had been passed a few weeks earlier by the Senate, now goes to the White House where President Obama is expected to sign it. “This legislation will support the development of new therapies by removing a barrier that … [Read more...]
Team Courtney Taking Action! – AIDS WALK, October 2, 2010
September 27, 2010 by
Team Courtney is Taking Action! October 2, 2010 This coming Saturday, October 2, 2010.....there is an,"Aids Walk", in Washington, D.C. for Aids Awareness and there is a team called,"Team Courtney", that will be representing not only my daughter Courtney, but countless other women, men and children who are living with or have lost their lives to PML and HIV/AIDS. The team members will be carrying posters and wearing Tee Shirts with Courtney's picture on the front and … [Read more...]
PML – ‘Progressive Multifocal Leukoencephalopathy’
September 15, 2010 by
'Progressive Multifocal Leukoencephalopathy' Lawsuits Possible as presented by AllVoices.com Progressive multifocal leukoencephalopathy (PML) lawsuits are on the Rise across the U.S. based on the many cases of patients who contracted this debilitating disease! That's why it is Imperative that,"Global Awareness of PML", is crucial! The Courtney Project_Courtney Leigh Hewitt who died from PML after a gross misdiagnosis last year because her own doctor ignored the results of her MRI … [Read more...]
PML – 'Progressive Multifocal Leukoencephalopathy'
September 15, 2010 by
'Progressive Multifocal Leukoencephalopathy' Lawsuits Possible as presented by AllVoices.com Progressive multifocal leukoencephalopathy (PML) lawsuits are on the Rise across the U.S. based on the many cases of patients who contracted this debilitating disease! That's why it is Imperative that,"Global Awareness of PML", is crucial! The Courtney Project_Courtney Leigh Hewitt who died from PML after a gross misdiagnosis last year because her own doctor ignored the results of her MRI … [Read more...]
~ PML ~ Rare Brain Disease continuing to climb in MS patients.
September 7, 2010 by
A Celebration of Women, in association with Author - Mr. Todd Hewitt, presents... Courtney's Story is not one that stands alone, as there are many variances of circumstance in our world that are increasing to more cases of PML being diagnosed. Below, Thomas Gryta, DOW JONES NEWSWIRE, writes an article on the 'increase' in cases of PML in patients with Multiple Sclerosis (MS). For more Information, please contact C. Clark: https://851.5b0.myftpupload.com/?page_id=15656 Support … [Read more...]
PML ‘Risk in Multiple Sclerosis patients’ – Angela shares her Story
August 29, 2010 by
Risks of PML in Multiple Sclerosis patients..... According to information released on October 29, 2009 by Biogen Idec, there have been 24 confirmed cases of progressive multifocal leukoencephalopathy (PML, a viral infection of the brain that usually leads to death or severe disability) among people who have used Tysabri® (natalizumab, Biogen Idec and Elan Pharmaceuticals) after it became available for prescription in July 2006. VIDEO ONLINE ONLY As of the end of September … [Read more...]
Courtney's Story – What is PML?
August 28, 2010 by
What is PML...???? Progressive Multifocal Leuko Encephalopathy. Courtney Leigh Hewitt PML can also occur in organ transplant patients, people undergoing chronic corticosteroid or immunosuppressive therapy, and people that have certain cancers, such as Hodgkin's disease, lymphoma, and sarcoidosis. PML disease most commonly occurs in anyone who has ever had the Chickenpox or has a weakened or compromised Immune System and affects the central nervous system and brain. The symptoms can be … [Read more...]
Grieving Father writes book….
August 3, 2010 by
Courtney's Story....compelling true story of a young mother's battle with PML. READ COMPLETE FEATURE HERE: https://851.5b0.myftpupload.com/?p=1654O … [Read more...]
