Forward this to a friend April 2011 eNews New Consortium Promotes Global Approach to Rare Diseases NORD and other patient advocates participated in the recent launch in Washington, DC of a new international consortium to promote global collaboration on rare diseases and orphan products. The International Rare Disease Research Consortium (IRDiRC) has set some ambitious goals, including the development of 200 new rare disease treatments by the year 2020 and the … [Read more...]
NORD – Newsletter @ April 2011
April 28, 2011 by admin
Filed Under: Courtney's Story, FEATURED Tagged With: A Celebration of Women, Affordable Care Act, AIDS, Australia!, challenges, Compromises, Courtney's Story, CT, Danbury, EURORDIS, HIV, Medicaid Innovation Seeks Ideas, National Organization for Rare, Newsletter @ April 2011, NORD, Orphan Diseases, Orphan Drug Act, PML., Rare Diseases, rarediseases.org, Shriners Hospitals for Children, The Courtney Project, The Innovation Center, Treatment of Rare Diseases, WOMEN of ACTION™, women taking action, women with diseases, women.
