Release of Courtney’s Story: Through Her Father’s Eyes by Reginald Todd Hewitt



Announcing the release of Courtney’s Story: Through Her Father’s Eyes by Reginald Todd Hewitt.

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ResizeImageHandlerbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbThis book is a true account of the events that took place throughout Courtney’s adult life.

From the moment she found out she was HIV positive to her untimely death from a misdiagnosis of PML Disease, is depicted throughout the 6 chapters.

How her family dealt with this tragedy is also recounted throughout the book. Her four children lost their mother at a very young age.

She never had the chance to watch them grow up, that she could have had if she not been misdiagnosed.

Her family greatly misses her, but her legacy will go on with the Courtney Project, which educates the world about PML Disease.

This book was released strictly for e-readers. It is available for all the e-readers out there.

PML: PML stands for Progressive Multifocal Leukoencephalopathy. The majority of the population carries the Polyomavirus JC, which is known as the JC virus, and it normally lays dormant until a person’s immune system becomes weakened.

pml1This disease can occur in organ transplant patients, people undergoing chronic corticosteroid or immunosuppressive therapy, and people that have certain cancers, such as Hodgkin’s disease, lymphoma, and sarcoidosis.

PML Disease most commonly occurs in individuals that are HIV positive. This disease affects the central nervous system and brain, often causing a misdiagnosis. The symptoms can be similar to other diseases out there, which is why it is so hard to detect. The JC virus will cause lesions on the brain and begin to affect the nervous system.

With PML disease there is no set way that it affects every person. It depends on which section of the brain it decides to affect that will cause symptoms. For instance, when it attacks the part of the brain that controls a person’s motor skills that person will lose the ability to walk or talk.

pml2Early symptoms may include a weakness on one side, blurred vision, fatigue, impairment of learned skills, confusion, disorientation, loss of balance, and a possibility of seizures.

Symptoms can often be misdiagnosed as a stroke or other similar HIV related conditions that affect the brain. The only effective way of properly diagnosing PML Disease is through a brain biopsy. The treatment of PML can be just as bad as retrieving the diagnosis.

The treatment of medications was given through a shunt in the brain. Now it has been discovered that an aggressive anti-HIV therapy can possibly result in the remission of PML. If a person is misdiagnosed and does not receive the proper treatment, then their life expectancy will be one to three months. Because this disease is so rare and little is known about it more people have passed away than should have.


Reginald Todd Hewitt currently resides in Orlando, Florida with his four grandchildren.

He maintains an active role in his community and school activities. By request only, he speaks to groups about PML and how it has personally changed his life. ~ Also just found out we will be receiving this year Proclamations from the states of South Carolina (where Courtney was born) North Carolina, Georgia, Kentucky, Tennessee, Virginia!


Georgia, South Carolina, Tennessee, Kentucky, North Carolina, Virginia and Delaware in 2013, with PML Global Awareness Proclamations!


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