The video will be available for order along with the beautiful PML Awareness Lapel Pin. With a Donation of $25 or more to The Courtney Project The Courtney Project.org you will receive a copy of Courtney's Story written by Reginald Todd Hewitt and your very own awareness pin to show your support! Fabian Morales, a Colombian born Film Producer/Director has graciously offered his time and many talents and has become the newest member of Team … [Read more...]
The Courtney Project.org is Taking Action with Fabian Morales!
Courtney’s Spirit is Taking Action – What is PML?
What is PML...???? Progressive Multifocal Leuko Encephalopathy. Courtney Leigh Hewitt PML can also occur in organ transplant patients, people undergoing chronic corticosteroid or immunosuppressive therapy, and people that have certain cancers, such as Hodgkin's disease, lymphoma, and sarcoidosis. PML disease most commonly occurs in anyone who has ever had the Chickenpox or has a weakened or compromised Immune System and affects the central nervous system and brain. The symptoms … [Read more...]
NORD Foundation ~ October 2011
October 2011 eNews Nearly 400 Participate in NORD Conference At the U.S. Conference on Rare Diseases and Orphan Products in Washington DC Oct. 11-13, NORD released a major new study documenting flexibility in the Food and Drug Administration (FDA) review of potential treatments for patients with rare diseases. The study examined the approval of 135 non-cancer orphan drugs since 1983. Read the report and NORD’s press release. Speakers Include NIH Director, … [Read more...]
TODD HEWITT: Mother’s Day
Mother's Day Today is just another day on a calendar made by man For all the days past and still yet to come Mourn not for me but rejoice for your day will also come It won't be marked on a calendar so plans need not be made You see God has a plan that has already been laid! Perhaps, by the moonlight on a bright starry night Perhaps on a bright sunny day Perhaps in the Spring during a soft gentle rain With death comes pain and most times grief … [Read more...]
TODD HEWITT: Mother's Day
Mother's Day Today is just another day on a calendar made by man For all the days past and still yet to come Mourn not for me but rejoice for your day will also come It won't be marked on a calendar so plans need not be made You see God has a plan that has already been laid! Perhaps, by the moonlight on a bright starry night Perhaps on a bright sunny day Perhaps in the Spring during a soft gentle rain With death comes pain and most times grief … [Read more...]
Courtney's Story – 2nd Anniversary of her Death.
~~ Courtney's Story ~~ 2nd Anniversary of her Death. Today is the 2nd anniversary of Courtney's death and as I expected I felt drawn to ride out the night until 8:18 a m this morning sitting by her bed as I did two years ago today. The only difference today was, I wasn't holding her hand, but her heart in mine. It was hard to send the kids off to school today, but Courtney would not have had it any other way. I pray somehow the powers above will allow all of this to come … [Read more...]
Courtney’s Story – 2nd Anniversary of her Death.
~~ Courtney's Story ~~ 2nd Anniversary of her Death. Today is the 2nd anniversary of Courtney's death and as I expected I felt drawn to ride out the night until 8:18 a m this morning sitting by her bed as I did two years ago today. The only difference today was, I wasn't holding her hand, but her heart in mine. It was hard to send the kids off to school today, but Courtney would not have had it any other way. I pray somehow the powers above will allow all of this to come … [Read more...]











