Celebrating Sixty with a Mission, Todd Hewitt

Turning sixty is the day which makes most people realize that they are inching closer towards retirement. This is why sixtieth birthdays are all about celebrating the beginning of the end of life’s hectic years. No one knows that better than Reginald Todd Hewitt, Founder and Executive Director of a not for profit organization established for one of his daughters whom he lost suddenly in 2009 of a rare viral disease called Progressive Multifocal Leukoencephalopathy (PML). At a time when … [Read more...]

Mother’s Day TCP‏

Happy Mother's Day our Dear beautiful Mother, Courtney Leigh Hewitt. We miss you, we love you, we feel your presence everywhere and today, although we can't embrace you, smell your perfume, we know you are always and forever here with us! What we are able to shower you with today are all the beautiful proclamations and awards given in your honor! Even after your death, your voice is synonymous and radiates around the world as people learn what a loving, caring and compassionate mother you … [Read more...]

2014 PML AWARENESS RUN & WALK – OCT 11 (Orlando)

Dear Friends and Supporters, Now in existence for over 5 years, The Courtney Project www.the-courtney-project.org continues to strive to expand its programs and offerings to the community. We hope that you will be able to take part in one or more of the many exciting events that we are offering this year and experience firsthand the pride we take in supporting our cause. It is our mission to increase global awareness of Progressive Multifocal Leukoencephalopathy (PML) a rare viral … [Read more...]

The Courtney Project (501c3) is Taking Action !

SUPPORT The Courtney Project(501c3) Today! The cause of PML is a type of polyomavirus called the JC virus (JCV), after the initials of the patient from whose tissue the virus was first successfully cultured. Recent publications indicate 39% to 58% of the general population are seropositive for antibodies to JCV, indicating current or previous infection with virus. The JC virus or John Cunningham virus (JCV) is a type of human polyomavirus (formerly known as papovavirus) and is … [Read more...]

The Courtney Project.org is Taking Action with Fabian Morales!

  The video will be available for order along with the beautiful PML Awareness Lapel Pin.     With a Donation of $25 or more to The Courtney Project The Courtney Project.org you will receive a copy of Courtney's Story written by Reginald Todd Hewitt and your very own awareness pin to show your support!     Fabian Morales, a Colombian born Film Producer/Director has graciously offered his time and many talents and has become the newest member of Team … [Read more...]

Courtney’s Spirit is Taking Action – What is PML?

What is PML...???? Progressive Multifocal Leuko Encephalopathy. Courtney Leigh Hewitt PML can also occur in organ transplant patients, people undergoing chronic corticosteroid or immunosuppressive therapy, and people that have certain cancers, such as Hodgkin's disease, lymphoma, and sarcoidosis. PML disease most commonly occurs in anyone who has ever had the Chickenpox or has a weakened or compromised Immune System and affects the central nervous system and brain. The symptoms … [Read more...]

NORD Foundation ~ October 2011

  October 2011 eNews Nearly 400 Participate in NORD Conference At the U.S. Conference on Rare Diseases and Orphan Products in Washington DC Oct. 11-13, NORD released a major new study documenting flexibility in the Food and Drug Administration (FDA) review of potential treatments for patients with rare diseases.  The study examined the approval of 135 non-cancer orphan drugs since 1983.  Read the report and NORD’s press release. Speakers Include NIH Director, Social … [Read more...]

TODD HEWITT: Mother's Day

Mother's Day Today is just another day on a calendar made by man For all the days past and still yet to come Mourn not for me but rejoice for your day will also come It won't be marked on a calendar so plans need not be made You see God has a plan that has already been laid! Perhaps, by the moonlight on a bright starry night Perhaps on a bright sunny day Perhaps in the Spring during a soft gentle rain With death comes pain and most times grief … [Read more...]

TODD HEWITT: Mother’s Day

Mother's Day Today is just another day on a calendar made by man For all the days past and still yet to come Mourn not for me but rejoice for your day will also come It won't be marked on a calendar so plans need not be made You see God has a plan that has already been laid! Perhaps, by the moonlight on a bright starry night Perhaps on a bright sunny day Perhaps in the Spring during a soft gentle rain With death comes pain and most times grief … [Read more...]

Courtney’s Story – 2nd Anniversary of her Death.

    ~~ Courtney's Story ~~ 2nd Anniversary of her Death.     Today is the 2nd anniversary of Courtney's death and as I expected I felt drawn to ride out the night until 8:18 a m this morning sitting by her bed as I did two years ago today.  The only difference today was, I wasn't holding her hand, but her heart in mine. It was hard to send the kids off to school today, but Courtney would not have had it any other way. I pray somehow the powers above will allow all of this to come together … [Read more...]

Courtney's Story – 2nd Anniversary of her Death.

    ~~ Courtney's Story ~~ 2nd Anniversary of her Death.     Today is the 2nd anniversary of Courtney's death and as I expected I felt drawn to ride out the night until 8:18 a m this morning sitting by her bed as I did two years ago today.  The only difference today was, I wasn't holding her hand, but her heart in mine. It was hard to send the kids off to school today, but Courtney would not have had it any other way. I pray somehow the powers above will allow all of this to come together … [Read more...]

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