Celebrating Sixty with a Mission, Todd Hewitt

Turning sixty is the day which makes most people realize that they are inching closer towards retirement. This is why sixtieth birthdays are all about celebrating the beginning of the end of life’s hectic years. No one knows that better than Reginald Todd Hewitt, Founder and Executive Director of a not for profit organization established for one of his daughters whom he lost suddenly in 2009 of a rare viral disease called Progressive Multifocal Leukoencephalopathy (PML). At a time when … [Read more...]

Mother’s Day TCP‏

Happy Mother's Day our Dear beautiful Mother, Courtney Leigh Hewitt. We miss you, we love you, we feel your presence everywhere and today, although we can't embrace you, smell your perfume, we know you are always and forever here with us! What we are able to shower you with today are all the beautiful proclamations and awards given in your honor! Even after your death, your voice is synonymous and radiates around the world as people learn what a loving, caring and compassionate mother you … [Read more...]

2014 PML AWARENESS RUN & WALK – OCT 11 (Orlando)

Dear Friends and Supporters, Now in existence for over 5 years, The Courtney Project www.the-courtney-project.org continues to strive to expand its programs and offerings to the community. We hope that you will be able to take part in one or more of the many exciting events that we are offering this year and experience firsthand the pride we take in supporting our cause. It is our mission to increase global awareness of Progressive Multifocal Leukoencephalopathy (PML) a rare viral … [Read more...]

The Courtney Project (501c3) is Taking Action !

SUPPORT The Courtney Project(501c3) Today! The cause of PML is a type of polyomavirus called the JC virus (JCV), after the initials of the patient from whose tissue the virus was first successfully cultured. Recent publications indicate 39% to 58% of the general population are seropositive for antibodies to JCV, indicating current or previous infection with virus. The JC virus or John Cunningham virus (JCV) is a type of human polyomavirus (formerly known as papovavirus) and is … [Read more...]

Todd Reginald Hewitt – MAN of ACTION™

  A Celebration of Women™ is honored this day to Celebrate the Life of a thoroughly inspiring man, a definite awakened soul. Through a series of tragic events in his own life, this man has turned a new leaf and today devotes his life not only to his own family; but, to a cause that will assist all families to become aware ... of a viral disease that could affect up to 95% of our society named: PML Taken Action in his life for the betterment of others !!!     MAN of … [Read more...]

The Courtney Project.org is Taking Action with Fabian Morales!

  The video will be available for order along with the beautiful PML Awareness Lapel Pin.     With a Donation of $25 or more to The Courtney Project The Courtney Project.org you will receive a copy of Courtney's Story written by Reginald Todd Hewitt and your very own awareness pin to show your support!     Fabian Morales, a Colombian born Film Producer/Director has graciously offered his time and many talents and has become the newest member of Team … [Read more...]

Courtney’s Spirit is Taking Action – What is PML?

What is PML...???? Progressive Multifocal Leuko Encephalopathy. Courtney Leigh Hewitt PML can also occur in organ transplant patients, people undergoing chronic corticosteroid or immunosuppressive therapy, and people that have certain cancers, such as Hodgkin's disease, lymphoma, and sarcoidosis. PML disease most commonly occurs in anyone who has ever had the Chickenpox or has a weakened or compromised Immune System and affects the central nervous system and brain. The symptoms … [Read more...]

NORD Foundation ~ October 2011

  October 2011 eNews Nearly 400 Participate in NORD Conference At the U.S. Conference on Rare Diseases and Orphan Products in Washington DC Oct. 11-13, NORD released a major new study documenting flexibility in the Food and Drug Administration (FDA) review of potential treatments for patients with rare diseases.  The study examined the approval of 135 non-cancer orphan drugs since 1983.  Read the report and NORD’s press release. Speakers Include NIH Director, Social … [Read more...]

WOMAN of ACTION™ – Courtney Leigh Hewitt

A Celebration of Women™ is honored to Celebrate the Life through this Tribute to a Caring, Compassionate, Courageous, Giving and Strong Woman! This Woman's dying wish was to share her Story so that as many people possible could be educated on the elusive traits of a disease named PML. The Courage and Strength that she maintained during her experience with this disease is an Inspiration to One & All. In the words of her Father: '...before Courtney lost her ability to speak, she asked me … [Read more...]

Courtney Reaches out to the Florida Keys!

  CONCH COLOR of the Florida Keys share this very important true story ...   Father turns anger over daughter’s death... into mission to educate others about PMLTodd Hewitt is on a mission to spread the word about a little- known disease that took the life of his beloved 31-year-old daughter two years ago. The former Orangeburg resident’s daughter, Courtney Leigh, died of progressive multifocal leukoencephalopathy, a condition that even the specialists treating Courtney … [Read more...]

Courtney's Dad 'GETS MAIL' , PML Strikes Again !!!

Dear Mr. Hewitt, Thank you so much for your response! Somehow, it makes me feel better to know there is someone who totally understands the devastation and heartache our family is currently going thru. I was told today that she is being started on IVIG treatment. They put her on Heparin yesterday evening; and were hoping to remove the catheter from her neck (where she had the plasma exchange treatments), but said her blood was too thin right now to attempt that. Hopefully, they will get that … [Read more...]

Courtney’s Dad ‘GETS MAIL’ , PML Strikes Again !!!

Dear Mr. Hewitt, Thank you so much for your response! Somehow, it makes me feel better to know there is someone who totally understands the devastation and heartache our family is currently going thru. I was told today that she is being started on IVIG treatment. They put her on Heparin yesterday evening; and were hoping to remove the catheter from her neck (where she had the plasma exchange treatments), but said her blood was too thin right now to attempt that. Hopefully, they will get that … [Read more...]

PML Strikes Again!!!!

Progressive Multifocal Leukoencephalopathy (PML) A Celebration of Women is here for the Women of our World, WE hear YOU! Below is just one letter received by the grieving father of our very own WOMAN of ACTION - Courtney Leigh Hewitt who died unnecessarily of the JC Virus activated, misdiagnosed and allowed the time to ignite the viral brain disease named PML. Below, you will read the cry and pleas of one more victim to this horrific, under estimated, under appreciated … [Read more...]

NORD Foundation – May 2011

May 2011 ~  eNews NORD to Co-sponsor 1st Annual Rare Diseases/Orphan Products Summit NORD will co-sponsor the 1st Annual Rare Diseases/Orphan Products Summit on Oct 11-13, under the auspices of the Drug Information Association (DIA). Collaborating organizations include EURORDIS (the European Rare Disease Organization), FDA, NIH, and Duke Clinical Research Institute. In addition to plenary sessions with senior government, industry, and patient speakers, there will be three tracks at the … [Read more...]

NORD – Newsletter @ April 2011

    Forward this to a friend April 2011 eNews New Consortium Promotes Global Approach to Rare Diseases NORD and other patient advocates participated in the recent launch in Washington, DC of a new international consortium to promote global collaboration on rare diseases and orphan products. The International Rare Disease Research Consortium (IRDiRC) has set some ambitious goals, including the development of 200 new rare disease treatments by the year 2020 and the … [Read more...]

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