CARE, In a crisis, we are there‏ …

When a typhoon hits, we're there. We are there when a drought causes crops to fail, leaving families desperate for just one meal a day. Earthquakes, hurricanes, flooding: we can't predict when they'll come, but we can predict that we'll be there, responding to the most urgent needs. We will stay for as long as it takes. Even with all our trained and dedicated staff on the ground, none of our work is possible without the support of people like you. Your gift will help girls, boys, and … [Read more...]

NORD: 1st Annual U.S. Conference On Rare Diseases & Orphan Products‏

Stellar Lineup of Speakers Announced for U.S. Conference On Rare Diseases And Orphan Products Join all stakeholders – patient advocates, researchers, government, industry, investors – in this 1st Annual Summit featuring thought leaders and focusing on collaboration! You are invited to the 1st Annual U.S. Conference on Rare Diseases and Orphan Products to be hosted by the National Organization for Rare Disorders (NORD) and the Drug Information Association (DIA). Additional support … [Read more...]

NORD e-News: July 2011 Edition

NORD e-News: July 2011 Edition Send a Message to Congress on NORD Website Federal budget cuts have been proposed to Medicare reimbursement for drugs and biologics as part of a compromise to raise the debt ceiling. One proposal under consideration is to move orphan products from Medicare Part B coverage to Part D. This could greatly increase the cost for some patients and families dependent on lifesaving orphan drugs and biologics. You can quickly and easily submit a message to President … [Read more...]

Potassium Iodide for Radiation? – Lissa Rankin, Care2

    Should You Stockpile Potassium Iodide for Radiation?     http://www.rusticgirls.com/disasters/potassium-iodide.php    Apparently, San Francisco and LA health food stores are selling out of potassium iodide supplements because people in California (as well as other West Coast areas) are panicking about the possibility of radiation fallout from the nuclear power plant disaster in Japan. I’ve already received emails from concerned parents warning me to feed my daughter miso soup with seaweed … [Read more...]

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