Courtney’s Story

Todd Reginald Hewitt – MAN of ACTION™

September 9, 2012 by Team Celebration Leave a Comment

A Celebration of Women™ is honored this day to Celebrate the Life of a thoroughly inspiring man, a definite awakened soul. Through a series of tragic events in his own life, this man has turned a new leaf and today devotes his life not only to his own family; but, to a cause that will assist all families to become aware ... of a viral disease that could affect up to 95% of our society named: PML Taken Action in his life for the betterment of others !!! MAN of … [Read more...]

Filed Under: FEATURED, MAN of ACTION™ Tagged With: A Celebration of Women, Bea Arthur, Betty Lane Cherry Gramling-Owner, Betty Lane Models, Bloomingdales, blurred vision, brain biopsy, chronic corticosteroid, confusion, Courtney's Story, CT Scan, disorientation, Don Johnson, Fashion Stylist, fatigue, Hodgkin’s disease, immunosuppressive therapy, impairment of learned skills, JC Virus, loss of balance, lymphoma, MAN of ACTION, Melanie Griffin, men, MRI, Nell Carter, Orangeburg, Orlo Vista Chamber Board, Orlo Vista Chamber of Commerce, PML., possibility, President of M.A.A.I, progressive multi-focal-leuko-encephalapathy, S.C.State College, sarcoidosis, seizures, Sidney Poitier, South Carolina, South Carolina Public School System, Todd Reginald Hewitt, Todd Reginald Hewitt - MAN of ACTION™, viral disease, Walt Disney World Company Entertainment, weakness on one side, women.

NORD: 1st Annual U.S. Conference On Rare Diseases & Orphan Products‏

August 11, 2011 by Team Celebration Leave a Comment

Stellar Lineup of Speakers Announced for U.S. Conference On Rare Diseases And Orphan Products Join all stakeholders – patient advocates, researchers, government, industry, investors – in this 1st Annual Summit featuring thought leaders and focusing on collaboration! You are invited to the 1st Annual U.S. Conference on Rare Diseases and Orphan Products to be hosted by the National Organization for Rare Disorders (NORD) and the Drug Information Association (DIA). Additional … [Read more...]

Filed Under: Courtney's Story, WOMEN, HEALTH & WELL-BEING Tagged With: (NIH)., A Celebration of Women, Amicus Therapeutics, Audrey Ashley at NORD, Bausch and Lomb, Center for Devices and Radiological Health, Center for Drug Evaluation and Research, Chairman and CEO, Chairman of the Board, Courtney's Story, director, Engelberg Center for Health Care Reform, Executive Director, FasterCures, FDA, Frank J. Sasinowski, Fred Hassan, Hyman, Inc., Janet Woodcock, JD, Jeffrey Shuren, John F. Crowley, Kelly C. Slone, limited scholarship, Margaret Anderson, Mark B. McClellan, MBA, MD, Medical Industry Group, MPH, National Organization for Rare Disorders, National Venture Capital Association, NIH Director Francis S. Collins, NORD, partner, patient organizations, Phd., Phelps & McNamara, Rare Diseases, senior vice president, Shannon Lewis at DIA, Shire Human Genetic Therapies, Stellar Lineup of Speakers, Suzanne L. Bruhn, Take Action, The Brookings Institution, The Courtney Project, Warburg Pincus, women taking action, Women's Health

PRESS RELEASE …based on a true life Courtney’s Story!

May 19, 2011 by admin 13 Comments

A Celebration of Women is elated to announce to the Women of our World the following PRESS RELEASE. A Celebration of Women is a Global Women's Advocacy Foundation created to inspire all women to step up and Take Action! This is accomplished through a marketing model of ‘Celebrating the Lives’ of Women Leaders , our WOMEN of ACTION, that are trailblazing, in one way or another, our path in this new millennium, for the further establishment of Gender Equity and Women's- Human … [Read more...]

Filed Under: AMERICAN [U.S.A.], CANADIAN, Courtney's Story, FEATURED EVENTS, WORLD EVENTS Tagged With: A Celebration of Women, babies, bigotry, Caesar Voghan, Catherine Anne Clark, Courtney's Story, Dads, daughter, father, father-daughter relationship, feature-length film, film, Florida, gay issues, girls, grandchildren, healthcare, healthcare system, HIV POSITIVE, independent filmmakers, Jealous Gods, Kate King Lynch, life-story of Courtney Hewitt, love, movie, movies, Orlando, race, racism, real life story, religion, sed on a true life Courtney's Story!, Southern Drama, The Courtney Project, Todd Reginald Hewitt, women taking action, womenm of action

PRESS RELEASE …based on a true life Courtney's Story!

May 19, 2011 by admin 13 Comments

TODD HEWITT: Mother’s Day

May 8, 2011 by admin Leave a Comment

Mother's Day Today is just another day on a calendar made by man For all the days past and still yet to come Mourn not for me but rejoice for your day will also come It won't be marked on a calendar so plans need not be made You see God has a plan that has already been laid! Perhaps, by the moonlight on a bright starry night Perhaps on a bright sunny day Perhaps in the Spring during a soft gentle rain With death comes pain and most times grief … [Read more...]

Filed Under: Courtney's Story, FEATURED Tagged With: A Celebration of Women, a mother's heart, a mother's message, a mother's song, children, Courtney's Story, faith, God, grieving father, message to children, Mother's Day, mother's love, Parents, poem, poetry, prayer, prose, spiritual, spiritual message, Todd Hewitt, WOMEN of ACTION™, women taking action

TODD HEWITT: Mother's Day

May 8, 2011 by admin Leave a Comment

NORD – Newsletter @ April 2011

April 28, 2011 by admin Leave a Comment

Forward this to a friend April 2011 eNews New Consortium Promotes Global Approach to Rare Diseases NORD and other patient advocates participated in the recent launch in Washington, DC of a new international consortium to promote global collaboration on rare diseases and orphan products. The International Rare Disease Research Consortium (IRDiRC) has set some ambitious goals, including the development of 200 new rare disease treatments by the year 2020 and the … [Read more...]

Filed Under: Courtney's Story, FEATURED Tagged With: A Celebration of Women, Affordable Care Act, AIDS, Australia!, challenges, Compromises, Courtney's Story, CT, Danbury, EURORDIS, HIV, Medicaid Innovation Seeks Ideas, National Organization for Rare, Newsletter @ April 2011, NORD, Orphan Diseases, Orphan Drug Act, PML., Rare Diseases, rarediseases.org, Shriners Hospitals for Children, The Courtney Project, The Innovation Center, Treatment of Rare Diseases, WOMEN of ACTION™, women taking action, women with diseases, women.

NORD: March 2011 Report

March 31, 2011 by admin Leave a Comment

March 2011 eNews NORD Welcomes Five New Board Members Five noted leaders in the rare disease community have been elected to the NORD Board of Directors. Details. NORD Forming Coalition on Medical Foods Issue At a conference hosted by NORD in Washington DC last month, approximately 80 patient advocates, physicians, genetic metabolic dietitians, and others agreed to form an ongoing coalition to address problems related to accessing the medical foods required for treatment … [Read more...]

Filed Under: CONTRIBUTORS, Courtney's Story Tagged With: AIDS, Athletes Rare Disease Champion, Barrett’s Esophagus, Cancer Genome, Chief Scientific Officer (CSO), Courtney's Story, diabetes, heart disease, HIV, Jordan Culbreath, March 2011 Report, Medtronic Global Heroes program, MS, NORD, Phenylketonuria (PKU), PML., Princeton University Running Back, Rare Disease Org., Sage Bionetworks, TB, The Courtney Project, tuberous sclerosis complex, tuberous sclerosis complex (TSC), University of Minnesota Consortium, Vanderbilt-Ingram Cancer Center (VICC)

Courtney’s Story – The New ABC’s of Life…

March 26, 2011 by admin Leave a Comment

The NEW A B C's of LIFE!! ... our world's brand new alphabet As most of you know by now, "Courtney's Story", has grown and has now become a Global Phenomenon raising awareness around the World of PML. You are probably thinking to yourself that PML are just three of the twenty six letters that make up our alphabet. True, they are just that! However, in today's society and in the world in which we all live. The alphabet we have all been raised on and learned even before … [Read more...]

Filed Under: Courtney's Story, FEATURED Tagged With: AIDS, alzheimers, breast cancer, colorectal cancer, Courtney's Story, daughters, diabetes, Fathers, global awareness, HIV, PML., Reginald Todd Hewitt, The New ABC's of Life..., viral diseases, WOMEN of ACTION™, women with HIV, Women's Health, women.

Courtney's Story – The New ABC's of Life…

March 26, 2011 by admin Leave a Comment

Todd Reginald Hewitt – MAN of ACTION™

NORD: 1st Annual U.S. Conference On Rare Diseases & Orphan Products‏

PRESS RELEASE …based on a true life Courtney’s Story!

PRESS RELEASE …based on a true life Courtney's Story!

TODD HEWITT: Mother’s Day

TODD HEWITT: Mother's Day

NORD: March 2011 Report

Courtney’s Story – The New ABC’s of Life…

Courtney's Story – The New ABC's of Life…

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