NORD February 2011 eNEWS

  Forward this to a friend February 2011 eNews Countdown Begins to Rare Disease Day 2011 Across the nation and around the world, the rare disease community is preparing for Rare Disease Day 2011. To show your support, click on the countdown device to get a version that you can post on your website or blog. If you haven’t done so lately, be sure to visit the U.S. Rare Disease Day website and the global Rare Disease Day site to see what’s happening in the U.S. and around the … [Read more...]

Valentine for Mommy _Author Reginald Todd Hewitt

In memorial of... Courtney Leigh Hewitt      Valentine for Mommy   It's Valentines Day Dear Mommy so this is just for You The sky is oh so pretty with different shades of blue!    All our Love and Kisses we send to you today We feel you all around us, you're not that far away!   When Papi lights your candle as he does so everynight We all wrap our love around you and hold you oh so tight!   We whisper prayers from all of us, To you and God above knowing that you hear us, 'cause we all can feel … [Read more...]

RHONDA BRADDY – Team Courtney

  Team Courtney...memories of Taking Action in Summer 2010!     " My name is Rhonda Braddy and I was running in the 5K for a close friend Courtney Leigh Hewitt and other friends who I've lost to PML and/or HIV/AIDS; and those who are still living with HIV. I have attached a few pictures from the Aids Walk_2010 in Washington, D.C. this past Saturday.   In a summary who is Courtney?   Courtney was my friend who passed away of a disease called PML-progressive multifocal leukoencephalopathy, a … [Read more...]

Courtney's Story – 2nd Anniversary of her Death.

    ~~ Courtney's Story ~~ 2nd Anniversary of her Death.     Today is the 2nd anniversary of Courtney's death and as I expected I felt drawn to ride out the night until 8:18 a m this morning sitting by her bed as I did two years ago today.  The only difference today was, I wasn't holding her hand, but her heart in mine. It was hard to send the kids off to school today, but Courtney would not have had it any other way. I pray somehow the powers above will allow all of this to come together … [Read more...]

Courtney’s Story – 2nd Anniversary of her Death.

    ~~ Courtney's Story ~~ 2nd Anniversary of her Death.     Today is the 2nd anniversary of Courtney's death and as I expected I felt drawn to ride out the night until 8:18 a m this morning sitting by her bed as I did two years ago today.  The only difference today was, I wasn't holding her hand, but her heart in mine. It was hard to send the kids off to school today, but Courtney would not have had it any other way. I pray somehow the powers above will allow all of this to come together … [Read more...]

Courtney's Story: How much do you know about Reginald Todd Hewitt?

      How much do you know about Reginald Todd Hewitt?   Allen Tyler_ I knew Reginald Todd Hewitt (Reggie) when we were in first grade together at Homewood Elementary School in Conway, South Carolina. As I recall, This was a era when times were hard and living and growing up in the deep south was even harder, especially when you weren’t wealthy or white; no matter whether you were black or white, in my case, I was neither, but both! Sadly we were only allowed to talk or interact or play … [Read more...]

Courtney’s Story: How much do you know about Reginald Todd Hewitt?

      How much do you know about Reginald Todd Hewitt?   Allen Tyler_ I knew Reginald Todd Hewitt (Reggie) when we were in first grade together at Homewood Elementary School in Conway, South Carolina. As I recall, This was a era when times were hard and living and growing up in the deep south was even harder, especially when you weren’t wealthy or white; no matter whether you were black or white, in my case, I was neither, but both! Sadly we were only allowed to talk or interact or play … [Read more...]

Gerry Batte Russell Taking Action!

      Gerry Batte Russell     Taking Action...!        "I became "friends" with Todd R. Hewitt on Facebook and after reading brief reviews at A Celebration of Women.org about a book he had written and chatting back and forth with him,  I ordered his book "Courtney's Story." I loved all the family photos in the book, because it put faces with the story. "Courtney's Story", really broke my heart! She was a vivacious young single mother of four beautiful children ages 7, 8, 11 and 12.; she … [Read more...]

Courtney’s Story: Special Holiday Offer!

  Courtney's Story: A Compelling True Story My Precious Baby Girl [Paperback]    WOMAN of ACTION: Courtney Leigh Hewitt https://851.5b0.myftpupload.com/?p=16540    HOLIDAY OFFER not to be missed!   Order NOW!   CLICK HERE:  Reginald Todd Hewitt       … [Read more...]

NORD – December 2010

    NORD e-News: December 2010 Edition   Holiday Greetings to All! On behalf of the NORD staff, Board of Directors, and Medical Advisory Committee, we extend our best wishes to all for happy holidays and a wonderful New Year! NORD is blessed with a strong and supportive circle of members and friends. We look forward to working with all of you to make 2011 the best year ever for the patients and families who rely on us to promote awareness, innovative research, medical advances, and fair … [Read more...]

Courtney Leigh Hewitt's: 'Christmas in Heaven' @ Wanda White

  A Celebration of Women is very excited to share this piece of prose created by a loving woman, a Mother herself; setting into our hearts a message from our WOMAN of ACTION, Courtney Leigh Hewitt.  As we have confirmed many times, this little Woman, Courtney's Spirit lives on and on and on.....ne'er to be forgotten.  As Team Courtney works in 2011 for her Legacy to our World: Global Awareness of PML, may the Spirit of Courtney guide and God provide. _________________________________   WOMAN … [Read more...]

Courtney Leigh Hewitt’s: ‘Christmas in Heaven’ @ Wanda White

  A Celebration of Women is very excited to share this piece of prose created by a loving woman, a Mother herself; setting into our hearts a message from our WOMAN of ACTION, Courtney Leigh Hewitt.  As we have confirmed many times, this little Woman, Courtney's Spirit lives on and on and on.....ne'er to be forgotten.  As Team Courtney works in 2011 for her Legacy to our World: Global Awareness of PML, may the Spirit of Courtney guide and God provide. _________________________________   WOMAN … [Read more...]

NORD – November 2010 Newletter: World Rare Disease Day 2011 in the U.S.

      November 2010 eNews    What Will You Do for Rare Disease Day 2011? As the national sponsor for World Rare Disease Day in the U.S., NORD has launched a redesigned Rare Disease Day US website for the 2011 campaign. We hope you’ll visit it often over the next few months to learn about activities and events taking place on or before Rare Disease Day, which is observed on the last day of February each year. Some activities posted on the US site also will appear on the global … [Read more...]

The Courtney Project – Bill Bates Takes Action!

    A Celebration of Women is elated to share that our WOMAN of ACTION - Courtney Leigh Hewitt, is going strong.  Her life grows still, more and more each day... and we are sure her spirit, wanting to help other women,  is Taking Action! This day, we celebrate Bill Bates, a gentleman, retired Marine, of great honors himself, having devoted his life to others, now takes the time to honor Courtney's Life by helping her Father Todd Hewitt,  with his  Taking Action! Please listen to Bill, as he … [Read more...]

Courtney Leigh Hewitt – Taking Action: A Father’s Cry for Awareness!

      A Celebration of Women celebrates the Life of Courtney Leigh Hewitt, never to be forgotten or lived in Vain. The passing of Courtney to the horrible viral disease of PML has inspired a devoted Team of empassioned people to enter Crusade mode, creating global Awareness of PML. Long live the Spirit of Courtney Leigh Hewitt! … [Read more...]

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